A few people suggested I start a blog after I was diagnosed. Mostly because it's a good way to vent and it means you can look back and see how far you've come and how things have improved. I Agree that writing your thoughts down is an excellent way to vent frustrations without moaning to loved ones, it's also a good way of putting order into your thoughts to help you think clearly when you're head seems to have too much flying around in it all at once!
However, I didn't see the point in a blog as I felt it was a personal thing to do and no one else need be concerned with it. Instead I bought a lovely little leather bound notebook and i've been keeping my notes in there.
Since then, I've realised why a blog is a good idea. Whilst searching for hope on the internet I came across a few blogs of people who have been battling synovial sarcomas. The positive attitude and courage in some of these people when facing what they have to face has inspired me and lifted my spirits so many times now. I always thought my story was a bit too doom and gloom to bring to anyone's attention as most people are looking for success stories. I feel now that with all the twists and turns, my story is worth telling as it might give others hope and strength to stay strong and carry on when the outlook is bleak!
I've just started what I think is the final stage of my treatment, hence the 'better late than never'.. So I shall summarise the whole escapade and see how it pans out.
Monday 28 November 2011
It's just me and lefty against the world..
So I was kinda back at square one, in terms of getting fit and used to just having one lung, after the RT induced tiredness wore off. It's been about two months since I finished. I'm starting to get out every day walking again and I plan on doing my first one lunged munro before the year is out :)
Tomorrow is my first CT scan since my operation. I've been looking forward to it, I hope to get good results so I get a wee boost to make me EVEN MORE jolly through the chrimbo period. Although yesterday I had an uncomfortable feeling at the bottom of my ribs and today it got worse. I've learnt to not freak out about little aches and pains to much as its totally normal, but because this is where my positive margins were, my mind is running away with its self a wee bit.
But other than the odd recurrence related freak out things have been going well. Robin has learnt to clap and therefore applauds most things I do, having your own wee ripple of applause following you around as you do the daily do, feels quite nice :) He's also started giving us kisses which is possibly one of the best bits of parenthood so far. His wee cousin Maya has started kissing too, here they are kissing each other :)
Roll on tomorrow..
Tomorrow is my first CT scan since my operation. I've been looking forward to it, I hope to get good results so I get a wee boost to make me EVEN MORE jolly through the chrimbo period. Although yesterday I had an uncomfortable feeling at the bottom of my ribs and today it got worse. I've learnt to not freak out about little aches and pains to much as its totally normal, but because this is where my positive margins were, my mind is running away with its self a wee bit.
But other than the odd recurrence related freak out things have been going well. Robin has learnt to clap and therefore applauds most things I do, having your own wee ripple of applause following you around as you do the daily do, feels quite nice :) He's also started giving us kisses which is possibly one of the best bits of parenthood so far. His wee cousin Maya has started kissing too, here they are kissing each other :)
Roll on tomorrow..
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