A few people suggested I start a blog after I was diagnosed. Mostly because it's a good way to vent and it means you can look back and see how far you've come and how things have improved. I Agree that writing your thoughts down is an excellent way to vent frustrations without moaning to loved ones, it's also a good way of putting order into your thoughts to help you think clearly when you're head seems to have too much flying around in it all at once!
However, I didn't see the point in a blog as I felt it was a personal thing to do and no one else need be concerned with it. Instead I bought a lovely little leather bound notebook and i've been keeping my notes in there.
Since then, I've realised why a blog is a good idea. Whilst searching for hope on the internet I came across a few blogs of people who have been battling synovial sarcomas. The positive attitude and courage in some of these people when facing what they have to face has inspired me and lifted my spirits so many times now. I always thought my story was a bit too doom and gloom to bring to anyone's attention as most people are looking for success stories. I feel now that with all the twists and turns, my story is worth telling as it might give others hope and strength to stay strong and carry on when the outlook is bleak!
I've just started what I think is the final stage of my treatment, hence the 'better late than never'.. So I shall summarise the whole escapade and see how it pans out.
Thursday 1 September 2011
The story so far.. July 2011
The recovery was really fast at first. Every day I was going a little further and slowly coming off my pain killers. Three weeks after my operation I played the last ever Kings of Macumba gig on the main stage at the Wickerman festival. I didn't think i'd make it, I'm so glad I did! We couldn't hang about at the festival for long though because I couldn't walk far and was still in quite a bit of pain.
I'm the odd one out cause I got there too late to put my top on and crept up behind the band just in time to start playing..
The recovery has slowed right down recently though, the pain is the same every day. Although I feel capable of walking much further and for longer the pain in my back and ribs gets in the way which is quite frustrating. Although, I'd be in this pain for the rest of my life, gladly, if it meant I got to live to an old age! Still though, I can't help but have a wee moan and feel quite sad about the position we're all in. Most of the time we're happy and having a laugh together!
The recovery has slowed right down recently though, the pain is the same every day. Although I feel capable of walking much further and for longer the pain in my back and ribs gets in the way which is quite frustrating. Although, I'd be in this pain for the rest of my life, gladly, if it meant I got to live to an old age! Still though, I can't help but have a wee moan and feel quite sad about the position we're all in. Most of the time we're happy and having a laugh together!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment